Message from the President
Dear Friends, Parents, Supporters, and Members,
It is my great honor and privilege to welcome you to the Muscular Dystrophy Foundation Nepal.
Parents of Duchenne Muscular Dystrophy boys initiated gathering together to share their experiences and educate new parents about muscular dystrophy. This novel work was supported by healthcare professionals, local social workers, and well-wishers. With an increase in numbers, we formally got registered in the government in 2003 with the name of Muscular Dystrophy Foundation Nepal (MDF-Nepal) with a shared vision of hope, dignity, and opportunity for every person living with these challenging conditions. The foundation has been dedicated to improving the lives of individuals and families affected by muscular dystrophy and related neuromuscular disorders throughout Nepal.
Muscular dystrophies, genetic disorders, present not only medical challenges but also social, emotional, and economic hardships for affected individuals, their families, and the society as a whole. At MDF-Nepal, we believe that no one should face this journey alone. Through awareness programs, rehabilitation services, physiotherapy support, genetic and psychological counseling, health camps, advocacy initiatives, and community outreach, we strive to empower individuals to lead meaningful and productive lives.
Our mission extends beyond care and support. We are committed to promoting early diagnosis, advancing knowledge, encouraging research, and fostering national and international partnerships that contribute to better treatment options and improved quality of life.
The progress we have achieved over the years would not have been possible without the unwavering support of our members, volunteers, healthcare professionals, donors, partners, and well-wishers, both national and international. Your compassion and commitment continue to inspire us and strengthen our resolve.
As we move forward, we invite you to join us in our mission. Together, we can build greater awareness, expand essential services, and create a more inclusive and supportive future for individuals affected by muscular dystrophy across Nepal.
Thank you for your trust, encouragement, and partnership.
With sincere regards,
Prof. Dr. Rohit Kumar Pokharel
President
Muscular Dystrophy Foundation Nepal