Muscular Dystrophy Foundation Nepal

मस्कुलर डिस्ट्रोफी फाउण्डेसन–नेपाल
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Who We Are

The Muscular Dystrophy Foundation Nepal (MDF Nepal) is a non-profit, non-governmental organization established in 2003 by a group of dedicated parents, healthcare professionals, and social workers. Our foundation was born out of the pressing need to address the challenges faced by individuals with muscular dystrophy and their families in Nepal.

"Our mission is to empower individuals with muscular dystrophy and other neuromuscular disorders by providing comprehensive support, fostering awareness, advocating for inclusive policies, and advancing research for improved quality of life."

Operating from Kathmandu with outreach across Nepal, MDF Nepal serves as a beacon of hope for hundreds of families affected by muscular dystrophy. We work to bridge the gap in healthcare services, social support, and awareness about these complex disorders.

Our History

Founded in 2003 by parents of children with muscular dystrophy and concerned medical professionals, MDF Nepal began as a small support group. Over the years, we have grown into a nationally recognized organization serving patients across all seven provinces of Nepal.

Our journey has been marked by significant milestones including the establishment of the first patient registry for muscular dystrophy in Nepal, organization of regular multidisciplinary health camps, and successful advocacy for better healthcare policies for neuromuscular disorders.

Our Approach

We believe in a holistic approach to supporting individuals with muscular dystrophy. Our work encompasses:

  • Direct patient support and medical assistance
  • Family counseling and psychological support
  • Educational programs and awareness campaigns
  • Advocacy for policy changes and rights protection
  • Research and data collection on MD in Nepal

Our Mission & Vision

Guiding principles that shape our work and define our aspirations

Our Mission

To empower individuals with muscular dystrophy and neuromuscular disorders through comprehensive support services, awareness programs, advocacy for inclusive policies, and advancement of research for improved diagnosis, treatment, and quality of life.

Our Vision

A Nepal where individuals with muscular dystrophy and other neuromuscular disorders live with dignity, have equal opportunities, access to quality healthcare and rehabilitation services, and are fully integrated into society without discrimination.

Our Values

Compassion, Integrity, Collaboration, Empowerment, and Innovation guide our every action. We believe in the inherent dignity of every individual and work to create an inclusive society where everyone can thrive regardless of their physical abilities.

Our Key Initiatives

Comprehensive programs addressing the diverse needs of the muscular dystrophy community

Health Camps

Multidisciplinary Health Camps

Regular health camps providing free consultations, diagnostic support, and treatment guidance for MD patients across Nepal.

Awareness Programs

Awareness & Education

Community awareness programs, school workshops, and educational materials to increase understanding of muscular dystrophy.

Patient Support

Patient & Family Support

Counseling services, support groups, and financial assistance for medical equipment and treatment costs.

Research & Advocacy

Research & Advocacy

Collecting data on MD prevalence, supporting research initiatives, and advocating for policy changes to improve patient care.

Our Impact

Making a difference in the lives of individuals and families affected by muscular dystrophy

450+
Patients Registered
23
Districts Covered
50+
Health Camps Organized
18
Years of Service

Join Us in Making a Difference

Whether you're a healthcare professional, a volunteer, a donor, or someone who wants to learn more about muscular dystrophy, there are many ways you can contribute to our mission.